Parents of 31 profoundly mentally retarded 
            residents of a skilled nursing home in the western suburbs are protesting 
            the state's plan to move them to small group homes, as required by 
            a recent legal settlement involving more than 600 mentally disabled 
            patients. 
            The parents say the lack of round-the-clock care at the group homes 
              would not meet the needs of their children, who suffer from serious 
              medical conditions, cannot talk or walk, and have a mental age of 
              less than one year.
            "I think my son could die, easily," Clara Sheehan of 
              Shrewsbury said of her son Patrick, 22, if he were forced to move 
              from the Seven Hills Pediatric Center, a nursing home in Groton, 
              to a group home.
            Sheehan said she fears Patrick, a quadriplegic who has cerebral 
              palsy and a tendency toward massive seizures, could suffer a medical 
              setback and not receive adequate care in the new setting. "He 
              could catch pneumonia or have a seizure, and no one would notice," 
              she said.
            The legal settlement stems from a 1998 case filed against the state 
              in US District Court in Springfield by the Center for Public Representation, 
              a Newton-based nonprofit law firm representing people with disabilities, 
              on behalf of Loretta Rolland and other state-supported patients 
              with mental retardation or other mental disabilities in nursing 
              homes.
            At the time, there were about 1,600 such residents across the state, 
              according to the Rolland settlement agreement. About 1,000 since 
              have been placed in community homes.
            The lawsuit hinged on the argument that, according to federal law, 
              the mentally retarded must be provided with the opportunity to exercise 
              personal choice, participate in and contribute to the community, 
              develop and sustain varied and meaningful relationships, and acquire 
              skills that increase self-reliance. That kind of treatment is offered 
              in small group homes, but only rarely in nursing homes, the lawsuit 
              says.
            The settlement in June says that by 2012, the state must create 
              640 new community placement slots for the mentally retarded and 
              disabled, and transition that number of nursing home residents into 
              them. The 31 Seven Hills residents are on the list to be transferred.
            State Assistant Secretary of Health and Human Services Jean McGuire 
              said the state is obliged to heed the agreement, but noted the moves 
              are part of Governor Deval Patrick's $20 million initiative, called 
              Community First, to provide community homes to more than 30,000 
              disabled and elderly, some of whom now live in nursing homes.
            "It's all about giving people - even people with intellectual 
              impairment - a choice," McGuire said.
            Sheehan doesn't see how a move helps her son. She represents one 
              side in a clash of views about how to care for the disabled. Some 
              believe they should be placed in small group homes with four or 
              five residents. But others - particularly advocates for the profoundly 
              retarded with multiple life-threatening medical conditions - say 
              they need the specialized care of a skilled nursing home.
            Some Seven Hills parents said they believe the state is complying 
              with the agreement in a bid to find less costly care. The average 
              price tag for a resident at Seven Hills for room and board is $330 
              per day, with an additional $67 a day for activities, according 
              to administrator Holly Jarek. The fees are paid by Medicaid.
            The parents say a group home probably would be less expensive because 
              it wouldn't provide 24-hour-a-day medical supervision. But the state 
              maintains that costs associated with community placement are comparable 
              to those at Seven Hills. "All group home settings have 24-hour 
              monitoring or oversight," including nursing care for those 
              who need it, McGuire said.
            Sheehan, who has worked as an adult day-care aide, argues that 
              her son differs dramatically from those who might benefit from the 
              settlement.
            Patrick "was actually born dead and it took them 15 minutes 
              to revive him," Sheehan said. Her son has cerebral palsy and 
              suffers from frequent seizures, sometimes as many as eight in a 
              row.
            He cannot talk, and has few reactions other than smiling sometimes 
              at voices he recognizes. He is fed through a tube. He requires a 
              custom-made wheelchair.
            Until their son was 18, Sheehan and her husband cared for Patrick 
              in their home, with the help of registered nurses. At that point, 
              doctors advised Sheehan to place Patrick in a nursing home, she 
              said. He has been at Seven Hills for four years, and now receives 
              the medical monitoring he needs, said his mother, in an emotional 
              interview.
            Seven Hills parents say they are furious that, as legal guardians 
              of their children, they were not given notice of the decade-old 
              court action until this spring, or a choice of whether they would 
              be included in the settlement.
            "I'm very frustrated," Sheehan said. "I feel like 
              I have no rights."
            The parents say Seven Hills provides the extra-medical social activities 
              required by law, such as trips to the movies and activities providing 
              stimulating sounds, smells, and interaction with an aide.
            "I just want this all to go away," Sheehan said. "I 
              just want my son to be able to stay where he's happy."
            Moreover, they say, the agency has not evaluated the medical conditions 
              of the people on the list, and does not have the expertise to do 
              so.
            McGuire said the list was developed after only "preliminary" 
              evaluations. Over the next four years, she said, the agency will 
              work with clinicians, guardians, and family members to assess each 
              individual's ability to handle and benefit from a community placement.
            Stephen M. Sheehy, an attorney representing the parents, said he 
              has filed a motion to decertify the class represented by the lawsuit 
              and appealed the settlement. If those measures fail, Sheehy said, 
              he hopes the state will reconsider who is appropriate for transfer.
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