Parents of 31 profoundly mentally retarded 
            residents of a skilled nursing home here are protesting the state's 
            plan to move them to small group homes, as required by a recent legal 
            settlement involving more than 600 of the mentally disabled across 
            the state. 
            The parents say the lack of round-the-clock care at the group homes 
              would not meet the needs of their children, who suffer from serious 
              medical conditions, cannot talk or walk, and have a mental age of 
              less than one year.
            "He would die," said Frank Voss, of Andover, about his 
              son Eric, if he were forced to move from the Seven Hills Pediatric 
              Center, a Groton nursing home, to a group home.
            Voss said he and his wife fear that Eric, a 27-year-old quadriplegic 
              with cerebral palsy, could unexpectedly suffer a medical setback 
              and not receive adequate care in the new setting. "There's 
              no doubt in our minds that this would be the end of him," Voss 
              said.
            The June settlement requires the state to move 640 residents with 
              mental retardation or other mental disabilities. State Assistant 
              Secretary of Health and Human Services Jean McGuire said the state 
              is obliged to heed the agreement, but noted the moves are also part 
              of a $20 million initiative by Governor Deval Patrick, called Community 
              First, to provide community homes to more than 30,000 disabled and 
              elderly, some of whom now live in nursing homes.
            "It's all about giving people - even people with intellectual 
              impairment - a choice," McGuire said.
            The Vosses don't see how a move helps their son. They represent 
              one side in the clash of views over how to care for the disabled. 
              Some believe they should be placed in small group homes with four 
              or five residents. But others - particularly advocates for the profoundly 
              retarded with multiple life-threatening medical conditions - say 
              they need the specialized care of a skilled nursing home.
            The legal settlement stems from a 1998 case filed in US District 
              Court in Springfield by the Center for Public Representation, a 
              nonprofit law firm representing people with disabilities, on behalf 
              of Loretta Rolland and others with mental retardation or other mental 
              disabilities in nursing homes.
            At the time, there were about 1,600 such residents across the state, 
              according to the settlement. About 1,000 since have been placed 
              in community homes.
            The lawsuit hinged on the argument that, according to federal law, 
              the mentally retarded must be provided with the opportunity to exercise 
              personal choice, participate in and contribute to the community, 
              develop and sustain varied and meaningful relationships, and acquire 
              skills that increase self-reliance. That kind of treatment is offered 
              in small group homes but only rarely in nursing homes, the lawsuit 
              says.
            The agreement says that by 2012, the state must create 640 new 
              community placement slots for the mentally retarded and disabled 
              and transition that number of nursing home residents into them. 
              The 31 Seven Hills residents are on the list to be transferred.
            Some Seven Hills parents said they believe the state is complying 
              with the agreement in a bid to find less costly care. The average 
              price tag for a resident at Seven Hills for room and board is $330 
              per day, with another $67 daily fee for activities, according to 
              administrator Holly Jarek. The parents say a group home is likely 
              to be less expensive because it would not provide 24-hour-a-day 
              medical supervision.
            But the state maintains that costs associated with community placement 
              are comparable to those at Seven Hills. "All group home settings 
              have 24-hour monitoring or oversight," including nursing care 
              for those who need it, McGuire said.
            Voss, who manages a laboratory at Transform Pharmaceuticals in 
              Lexington, argues that his son, who was born with cerebral palsy, 
              differs dramatically from those who might benefit from the settlement. 
              Eric is fed through a tube. He cannot talk and has little affect, 
              except to smile sometimes at voices he recognizes. He requires a 
              custom-made wheelchair.
            During his early years, Voss and his wife cared for Eric in their 
              home, with the help of registered nurses.
            At age 17, after hip surgery, Eric went into a coma for three weeks, 
              suffering additional brain damage, Voss said. Afterward, he needed 
              24-hour monitoring to prevent a similar episode, Voss said.
            At that point, doctors advised the Vosses to put Eric in a nursing 
              home, Voss said. He has been at Seven Hills for 6 1/2 years, and 
              now receives the medical monitoring he needs, said the father, in 
              an emotional interview.
            Seven Hills parents say they are furious that, as legal guardians 
              of their children, they were not given notice of the 1998 court 
              action until this spring, or a choice of whether they would be included 
              in the settlement.
            "To think that they can do this behind our backs, secretly, 
              is an outrage," Voss said.
            The parents say Seven Hills provides the extra-medical social activities 
              required by law, such as trips to the movies and activities providing 
              stimulating sounds, smells, and interaction with an aide. "This 
              notion that placement in a community setting is going to improve 
              his life is total nonsense," Voss said.
            Moreover, parents say the agency has not evaluated the medical 
              conditions of the people on the list, and does not have the expertise 
              to do so.
            McGuire said the list was developed after only "preliminary" 
              evaluations. Over the next four years, she said, the agency will 
              work to assess each individual's ability to handle and benefit from 
              a community placement.
            Stephen M. Sheehy, an attorney representing the parents, said he's 
              filed a motion to decertify the class represented by the lawsuit 
              and has appealed the settlement. If those measures fail, he said 
              he hopes the state will reconsider who's appropriate for transfer.
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